From the World Federation of Hemophilia (Thanks to Elaine Benoit, Precision BioLogic Inc for the heads-up):
Building a Family of Support on April 17, World Hemophilia Day
Every year on April 17, World Hemophilia Day is observed around the world to increase awareness of hemophilia and other inherited bleeding disorders. This is a critical effort with an ultimate goal of ensuring better diagnosis and access to care for the millions who have a rare bleeding disorder yet remain without treatment. A significant amount of care, support, and advocacy is done through extended families which come in many forms: medical teams, friends, and colleagues, as well as immediate relatives. These communities share the ability to come together in large numbers and help improve people’s lives.
World Hemophilia Day provides an opportunity to talk to your extended family and friends, colleagues, and caregivers to raise awareness and increase support for those living with an inherited bleeding disorder. This year connect with the global bleeding disorder family on the World Federation of Hemophilia social media network and encourage your online community to join the global family: http://www.worldhemophiliaday.org/